Living with any chronic condition, such as CKD, has many challenges, some physical and some emotional. It’s very common to feel sad, scared, frustrated and angry as you manage your health along with all the other aspects of life. At times, these emotions can feel overwhelming.
Here are a few things you can do to stay positive:
Most importantly, share how you’re feeling with others:
When something isn’t working, tell your kidney doctor, social worker, or care team. They’re here to help you whenever they can. You’re not alone.
Lina, a Satellite social worker, outlines all the ways a dialysis social worker can help make life a little easier – how to get answers on financial matters, help with reliable transportation, dialysis options that might offer more energy and flexibility, and much more.
Mrs. Keith shares her experience starting dialysis and the emotions she felt. With help from her social worker and a desire to watch her granddaughter grow, she’s now managing the details related to treatment and feeling more hopeful.
Laughter is one of the fastest, easiest ways to boost your mood. Satellite developed a laughter program for dialysis centers. This video gives you more information on the program plus walks you through the top ten laughter exercises. Get ready to get a little silly and laugh. Video available in Spanish.
Most of us care about the way we look. How we feel about our looks is called ‘body image.’ Body image affects our self-esteem and could include how much value we think we have.
Hearing someone’s story and perspective can help you adjust to what you may be going through. Peer mentoring programs connect you to someone who’s been through a similar situation. Ask your care team if they have a local peer mentoring program, or try the NKF PEERs program.
Just one of a number of online communities, NKF communities offer a safe and supportive place where patients and caregivers can share experiences, ask questions and get answers related to kidney health, kidney disease, transplantation and living organ donation. Participation is free and anonymous.
If you have a question about CKD, dialysis, or how to live a healthy lifestyle, ask someone on your kidney care team. They’re ready to listen anytime.
In addition, NKF CARES is a free information helpline available Monday through Friday from 9am to 5pm Eastern Time: 1.855.653.2273 that’s ready to answer questions and offer suggestions.
Hear how others who have kidney disease manage and have learned to thrive in spite of the emotions that come with kidney disease. Learn how to deal with negative feelings and anxiety, and turn them into a hopeful outlook toward the future.